Downloadable document (PDF) highlighting the current state of progress of the Hub
We hope that this finds you well, and that you are looking forward to some time off over the summer. This is a short update on what the Maternity and Neonatal Data Hub for Scotland have been doing recently.
One recommendation of ‘The Best Start – A Five Year Forward Plan for Maternity and Neonatal Care in Scotland’ was to establish a Maternity and Neonatal Data Hub. Best Start also recommended that “…national level maternity and neonatal dashboards should be developed to facilitate benchmarking and reduce variations in care”.
The COVID-19 pandemic has affected the Maternity and Neonatal Data Hub for Scotland, as it has everything else. Work in 2020/21 differed from planned activities. As part of our COVID-19 response last year, Public Health Scotland created a data dashboard showing wider impacts of COVID-19 at https://scotland.shinyapps.io/phs-covid-wider-impact/.This includes data on many aspects of maternity care in Scotland including: breastfeeding; stillbirths, neonatal and infant deaths; antenatal booking appointments (numbers and average gestation; from the new Antenatal Booking Collection data return); terminations of pregnancy (numbers and average gestation), and deliveries (gestation, mode (including C-section), whether induced, Apgar scores <7, and preterm births at NICU sites).
We are now getting back on track and wanted to give you a quick progress report on each of our five work streams:
The hub is a collaboration involving five delivery partners (the Scottish Perinatal Network, Healthcare Improvement Scotland, Scottish Government, National Records of Scotland, and Public Health Scotland). We are also developing links to colleagues undertaking similar national work in England (NHS Digital) and Wales, to UK-wide audits and with IT system suppliers.
The Programme Board (with representation from all five partners) is continuing to meet quarterly to discuss progress with new data acquisition and display.
The Maternity and Neonatal Data Access Liaison Group for Scotland (MaNDALS) was established to share updates from multiple parallel conversations involving organisations who require all-Scotland-consistent data for national purposes from clinical information systems (mainly BadgerNet), and to align these conversations. The group met for a fourth time in early June.
We are working with National Services Scotland Digital and Security (DaS) colleagues, with colleagues in NHS Boards, and with Clevermed – who provide the BadgerNet systems – to bring nationally-consistent maternity and neonatal data from clinical systems on to the Seer data holding and analysis platform that DaS have built.
We have established a new routine antenatal booking data collection; data from this is published monthly on the wider impacts dashboard mentioned above. Since March 2021, mother’s ethnicity is gathered in this data flow.
We are developing additional future antenatal booking data items. We have also been exploring other potential modules of an Enhanced Maternity Dataset for Scotland (EMaDS). After input from our Programme Board we have decided to focus initially on booking and delivery episodes. We have started development work on both of these.
We have finalised a dataset for routine submission. We are discussing with Clevermed (and NHS Boards) how we can have this dataset routinely available, how data will be stored (in the Seer platform mentioned earlier) and planning how data should be presented. We will be writing to Caldicott Guardians shortly with details of the secure data transfer method(s) we plan to use. Discussions are ongoing with the National Neonatal Network on how best to support their needs.
We previously developed a dashboard demonstrator, which is still available at https://readymag.com/PHIDigital/MatNeoDemonstrator/, that provides links to existing data displays.
To extend this, we have developed a “Topics Index”. This catalogues individual maternity and neonatal measures already available, including those on the wider impacts dashboard, Discovery, NMPA, NNAP and PHS websites. Over recent weeks, we have been presenting a ‘beta’ (preview) version of the Topics Index to key stakeholder groups (including MCQIC leads, Heads of Midwifery, Clinical Directors of Obstetrics, SG policy leads, Digital Midwives and the Neonatal Network), and seeking their feedback.
Having agreed the most appropriate data display platform(s) for maternity CORE measures with our Programme Board, we are developing additional displays to add to the existing public-access wider impacts dashboard (and its successor post-COVID) and to the access-controlled Discovery dashboard.
Members of the programme team are continuing to work with a National Neonatal Network Data Group, to develop a companion neonatal dashboard CORE.
Thank you for reading this update. If you have any queries or comments, please do get in touch and we will be happy to help you further.
We hope you and yours stay safe and well. Here’s hoping that, now so many of us have been vaccinated, the remainder of 2021 will bring us all more joy!
Very best wishes
Laura, Meena and Alastair
You can also contact us via our generic email address for the Hub Programme: email@example.com