Programme Briefings and Updates

The Mat Neo Data Hub programme team keeps its stakeholders up to date with progress through regular briefings and updates.

The most recent briefings are below.

Please contact the Hub Programme Team at phs.matneodatahub@phs.scot if you have questions or suggestions.

Briefing paper

Downloadable document (PDF) highlighting the current state of progress of the Hub

Briefing paper (April 2022)

 

Latest programme e-mail update (April 2022)

[some links updated in May 2022]

 

Dear Colleagues,

We hope that this finds you well, and that you manage some down time over the Easter period. This is a short, end of 21/22, update from the Maternity and Neonatal Data Hub for Scotland.

One recommendation of ‘The Best Start – A Five Year Forward Plan for Maternity and Neonatal Care in Scotland’ was to establish a Maternity and Neonatal Data Hub. Best Start also recommended that “…national level maternity and neonatal dashboards should be developed to facilitate benchmarking and reduce variations in care”.

The COVID-19 pandemic has affected the Maternity and Neonatal Data Hub for Scotland, as it has everything else.  Work in 2021/22 differed from planned activities. As part of our COVID-19 response, Public Health Scotland created a data dashboard showing wider impacts of COVID-19 at https://scotland.shinyapps.io/phs-covid-wider-impact/.  This continues to be updated each month and includes data on many aspects of maternity care in Scotland including: breastfeeding; stillbirths, neonatal and infant deaths; antenatal bookings (numbers and average gestation; from the new Antenatal Booking Collection data return); terminations of pregnancy (numbers and average gestation), and deliveries (gestation, mode (including C-section), whether induced, Apgar scores <7, and preterm births at NICU sites).

Despite the ongoing pressures of COVID-19 we resumed work in 2021/22 on a few fronts and wanted to give you a quick progress report on each of our five work streams:

 

 1.  Manage a visible Maternity and Neonatal Data Hub for Scotland partnership

The hub is a collaboration involving five delivery partners (the Scottish Perinatal NetworkHealthcare Improvement ScotlandScottish GovernmentNational Records of Scotland, and Public Health Scotland). We are also maintaining links to colleagues undertaking similar national work in England (NHS Digital) and Wales, to UK-wide audits and with IT system suppliers.

A Programme Board (with representation from all five partners) continues to meet quarterly to discuss progress with new data acquisition and display.

With the assistance of the Scottish Perinatal Network we have established a web presence at https://www.perinatalnetwork.scot/data/. Each of the hub’s workstreams is described, and links are provided to the resources that the hub has already developed. These include data dashboards and a Topics Index showing where maternity and neonatal data is already available.  Take a look and let us know what you think using the e-mails at the foot of this message.

 

2.  Align Maternity and Neonatal Data Collection, extraction, and data flow

The Maternity and Neonatal Data Access Liaison Group for Scotland (MaNDALS) was established to share updates from multiple parallel conversations involving organisations who require all-Scotland-consistent data for national purposes from clinical information systems (mainly BadgerNet), and to align these conversations. The group will meet for a sixth time later in April 2022.

We continue to work with National Services Scotland Digital and Security (DaS) colleagues, with colleagues in NHS Boards, and with Clevermed – who provide the BadgerNet systems – to bring nationally-consistent maternity and neonatal data from clinical systems on to the Seer data holding and analysis platform that DaS have built.  We are still in commercial negotiations with Clevermed to agree a subscription service contract to allow access to maternity and neonatal data that they hold on behalf of Scottish NHS boards, where boards ask them to do so.

We recently discussed data flows and data quality with the Scottish Digital Midwives group, who have agreed to work with us further in future as we finalise dataset development and test/validate the quality and completeness of this data from clinical systems.

 

3.  Establish new all-Scotland maternity data returns (Enhanced Maternity Dataset for Scotland; EMaDS)

During 2020 we established a new routine antenatal booking data collection (ABC); data from this is published monthly on the wider impacts dashboard mentioned above. Antenatal booking collection data can also be used to count how many women should have been offered antenatal screening.

The ABC data is being used by the COVID-19 in Pregnancy in Scotland (COPS) study to identify a dynamic cohort of pregnant women. COPS aims to find out how COVID-19 infection during pregnancy affects mothers and babies.  Data from COPS on COVID-19 infection in pregnant women and neonates, and on COVID-19 vaccination in pregnancy, is presented in some previous PHS COVID weekly reports. The 11 May 2022 version is at: https://publichealthscotland.scot/publications/covid-19-statistical-report/covid-19-statistical-report-11-may-2022/

Results from the COPS study were published in Nature Medicine on 13 Jan 2022:  https://www.nature.com/articles/s41591-021-01666-2. A summary is available at the COPS website.

We are developing an expanded version 2 of the Antenatal Booking Collection (ABC). We are also developing a Delivery and Baby (DeB) dataset, which will, in the initial version 1, be deployed alongside the existing SMR02 to gather additional data on deliveries and babies that is not included in SMR02.

Drafts of ABC v2 and DeB v1 were showcased at five webinar workshops in Dec 2021. We have also recently restarted exploratory work on collecting data on early pregnancy events (including miscarriage) from early pregnancy centres and primary care.

 

4.  Routine collection of data on specialist neonatal care (NeoCareIn+).

We developed a dataset for routine submission some time ago. We are still discussing with Clevermed (and NHS Boards) how we can have this dataset routinely available, how data will be stored (in the Seer platform mentioned earlier) and planning how data should be presented. We are working with the National Neonatal Network to support their needs.

 

5.  Data displays showing maternity and neonatal dashboard COREs

We previously developed a dashboard demonstrator, which is still available. This provides links to existing data displays and to the list of CORE maternity measures, including many that are available already on the wider impacts dashboard.

To extend this, we have released a “Topics Index”. This catalogues individual maternity and neonatal measures already available, including those on the wider impacts dashboardDiscoveryNMPANNAP and PHS websites. We appreciate the Google Sheets platform may not be available to all our users and are working to develop a more sophisticated accessible platform for the catalogue.   In the meantime, if you cannot access Google Sheets and would like to view the Topics Index, please contact the Hub Programme Team (phs.matneodatahub@phs.scot) and we will seek alternative ways of sharing the index with you.

Having agreed the most appropriate data display platform(s) for maternity CORE measures with our Programme Board, we have been developing additional displays to add to the existing public-access wider impacts dashboard (and its successor post-COVID) and preparing changes to the access-controlled Discovery dashboard.  We are considering how the new displays we produce can be maintained and reviewed regularly by relevant national organisations.

Members of the programme team are continuing to work with a National Neonatal Network Data Group, to develop a companion neonatal dashboard CORE.

Our colleagues in the maternity analytical team in Public Health Scotland published the annual Births in Scotland publication at the end of November 2021. A new annual report on Antenatal Booking, based on Antenatal Booking Collection data, was published at the end of March 2022. This includes data on numbers of pregnancies booked, maternal smoking status and gestation at booking.

 

Thank you for reading this update. If you have any queries or comments, please do get in touch and we will be happy to help you further.

 

We hope you and yours stay safe and well.

 

Very best wishes,

 

Iona, Meena and Alastair

(iona.douglas@phs.scot | meena.johnstone@phs.scot | alastair.philp2@phs.scot )

You can also contact us via our generic email address for the Hub Programme: phs.matneodatahub@phs.scot