MatNeo Data Hub Workstreams

The MatNeo Data Hub's work programme is made up of five 'component' workstreams. These are detailed below.

Please contact the Hub Programme Team at phs.matneodatahub@phs.scot if you have questions or suggestions.

1. Manage a visible Maternity and Neonatal Data Hub for Scotland partnership

As well as managing the inter-dependencies among the projects described below, we have stabilised a partnership involving collaboration among the five delivery partners, with close links to UK-wide audits and IT system suppliers

Within this workstream we provide regular updates to stakeholders about the programme and conduct stakeholder surveys.  Your feedback allows us to improve the MatNeo Data Hub, to make it more beneficial to our users.

 

2. Align Maternity and Neonatal data collection, extraction and data flow

We have reviewed a comprehensive list of nationally-collected (all-Scotland) datasets for maternity & neonatal care to identify data items that are either duplicated (same thing collected in same way in multiple datasets) or divergent (same thing collected in multiple datasets in similar but different ways).  Somewhat surprisingly, we discovered that there is less duplication and divergence at the data item level than we expected.  At the end of 2019 we confirmed, through a limited consultation, that we hadn’t missed anything important.

The Maternity and Neonatal Data Access Liaison Group for Scotland (MaNDALS) was established to share updates from multiple parallel conversations involving organisations who require all-Scotland-consistent data for national purposes from clinical information systems (mainly BadgerNet), and to align these conversations. The group met for a sixth time in April 2022.

We continue to work with National Services Scotland Digital and Security (DaS) colleagues, with colleagues in NHS Boards, and with Clevermed – who provide the BadgerNet systems – to bring nationally-consistent maternity and neonatal data from clinical systems in to Public Health Scotland (PHS).  We are continuing to consider with digital midwives, and others, how data quality (completeness and consistency) can be ensured when data is sourced from clinical systems.

We are progressing commercial negotiations with Clevermed to agree a subscription-service contract to allow access to maternity and neonatal data that they hold on behalf of Scottish NHS boards, where boards ask them to do so.

 

3. Establish new all-Scotland maternity data returns (Enhanced Maternity Dataset for Scotland – EMaDS)

Throughout 2019 we reviewed the national maternity data return (SMR02) and the national baby data return (SBR), with a view to developing enhanced future maternity and baby data returns that align to current service delivery, and provide more consistent data on maternity care, births and babies.

With the onset of the COVID-19 pandemic we refocussed our Enhanced Maternity Dataset for Scotland (EMaDS) work to capture close-to-real-time data on aspects of antenatal booking.  We were already proposing to separate the collection of antenatal booking data from collection of data on delivery (and other ends-of-pregnancy). We decided to dramatically accelerate that, and developed an Antenatal Booking Collection (ABC) data return (as an early implementation of a module of EMaDS).  We established weekly reporting for antenatal booking data, and received historic data back to April 2019, so we could report on all women pregnant in March 20 (and thereafter).

We have now established the Antenatal Booking Collection as a routine and enduring all-Scotland data return. This allows us to know how many women are pregnant at a point in time and therefore eligible for antenatal screening and immunisations. Numbers of women booking for antenatal care, and average gestation at booking, are published monthly in the pregnancy section of the wider impacts dashboard.

The Antenatal Booking Collection (ABC) data is being used by the COVID-19 in Pregnancy in Scotland (COPS) study to identify a dynamic cohort of pregnant women. COPS aims to find out how COVID-19 infection during pregnancy affects mothers and babies.  Data from COPS on COVID-19 infection in pregnant women and neonates, and on COVID-19 vaccination in pregnancy, has also been presented (most recently on 11 May) in some PHS COVID weekly reports.

Results from the COPS study were published in Nature Medicine on 13 Jan 2022. A summary is available at the COPS project site.

We are finalising an expanded version 2 of the Antenatal Booking Collection (ABC). We are also developing a Delivery and Baby (DeB) dataset, which will, in the initial version 1, be deployed alongside the existing SMR02 to gather additional data on deliveries and babies that is not included in SMR02. We will be testing both through one-off data transfers over the next six months.  We are also exploring how we can capture data on early pregnancy events (including miscarriage) from early pregnancy centres.

 

4. Routine collection of data on specialist neonatal care (NeoCareIn+)

We are working to establish routine collection of a new national (all-Scotland) minimum dataset on specialist neonatal care.

In November 2019 we received a one-off extract of data from BadgerNet Neonatal and we analysed this to see what we could learn, and what changes we might need to make to the draft dataset we developed in 2018/19.

We now have a dataset suitable for routine submission.  We are still discussing with Clevermed (and NHS Boards) how we can have this dataset routinely available, how data will be stored in PHS and planning how data should be presented.  We are working with the National Neonatal Network to support their needs.

 

5. Data displays showing maternity and neonatal CORE measures

We have developed CORE maternity measures for incorporation into maternity dashboards.  This supports Commitment 67 in Best Start: “National level maternity and neonatal dashboards should be developed to facilitate benchmarking and reduce variations in care”.  Such measures, using all-Scotland-comparable data, will support individual services and regional collaborations to learn from each other’s experience. To develop the initial list of CORE maternity measures we first explored WHAT measures are used in a variety of local and national dashboards. From this we made recommendations that were discussed in November 2019 with a short life working group. The working group contained representation from Heads of Midwifery, Clinical Directors of Obstetrics, the Scottish Perinatal Network and the Best Start Implementation Programme

The most up-to-date list of the CORE measures and where to find data on these is available here: https://readymag.com/PHIDigital/MatNeoDemonstrator/matcore/

Members of the programme team are continuing to work with a National Neonatal Network Data Group, to develop a companion neonatal dashboard CORE.

We previously developed a dashboard demonstrator, which provided links to existing data displays. This is no longer maintained but is still visible. 

We are still maintaining a topics index, which catalogues individual maternity and neonatal measures already available. More details  are given on the Web Resources page.

We have been developing additional data displays for maternity CORE measures  to add to post-COVID dashboards. These include time series charts to allow comparison (for a particular measure) across Health Board areas, and a multi-indicator board comparison to display multiple indicators for health board areas.  We have agreed a proposal for open-access post-COVID dashboards that incorporates these ideas with our Programme Board. We are also considering with Programme Board partners how new displays we produce can be maintained, and reviewed regularly by relevant national organisations.  In the meantime we have made some changes to the access-controlled Discovery dashboard, including using ABC data for monitoring gestation at booking.

Members of the programme team are continuing to work with a National Neonatal Network Data Group, to develop a companion neonatal dashboard CORE.

Our colleagues in the maternity analytical team in Public Health Scotland published the annual Births in Scotland publication at the end of November 2021. A new annual report on Antenatal Booking, based on Antenatal Booking Collection data, was published at the end of March 2022. This includes data on numbers of pregnancies booked, maternal smoking status and gestation at booking.  The annual Termination of pregnancy publication was released on Tu 31 May 2022.  Information is provided on a variety of characteristics including age, gestation, method of termination, NHS Board of residence and treatment, deprivation area, previous termination and Ground for termination.

 

Governance Structure

A MatNeo Data Hub Programme Board, with representatives from each delivery partner, meets quarterly to discuss programme activities and plans.

The MatNeo Data Hub is overseen by the Evidence & Data sub-group of the Best Start Programme Board.